1. TRACY FRECH ♀
Information acquired: 2025
TRACY FRECH is an academic who published a paper in 2021 entitled The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol. TRACY FRECH published this work as part of a team: Nordlund, Julia. Here is a description of this work: Background Systemic sclerosis (scleroderma; SSc) is a rare autoimmune connective tissue disease. We completed an initial feasibility trial of an online self-administered version of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program using the cohort multiple randomized controlled trial (RCT) design. Due to low intervention offer uptake, we will conduct a new feasibility trial with progression to full-scale trial, using a two-arm parallel, partially nested RCT design. The SPIN-SELF Program has also been revised to include facilitator-led videoconference group sessions in addition to online material. We will test the group-based intervention delivery format, then evaluate the effect of the SPIN-SELF Program on disease management self-efficacy (primary) and patient activation, social appearance anxiety, and f.
