48. SUSAN CADELL ♀
Information acquired: 2025
SUSAN CADELL is an academic who published a paper in 2010 entitled Designing and implementing a longitudinal study of children with neurological, genetic or metabolic. SUSAN CADELL published this work as part of a team: Siden, Harold. Here is a description of this work: Background: Children with progressive metabolic, neurological, or chromosomal conditions and their families anticipate an unknown lifespan, endure unstable and often painful symptoms, and cope with erratic emotional and spiritual crises as the condition progresses along an uncertain trajectory towards death. Much is known about the genetics and pathophysiology of these diseases, but very little has been documented about the trajectory of symptoms for children with these conditions or the associated experience of their families. A longitudinal study design will help to close this gap in knowledge. Methods/Design: Charting the Territory is a longitudinal descriptive, correlational study currently underway with children 0-19 years who are diagnosed with progressive neurological, metabolic, or chromosomal cond.